Hi friends,
I could not be writing a more different update after my June scans that last time. It's also going to be incredibly short, because I am typing with a fractured scapula. There's no good way to say that my June scans showed substantial progression--some of the worst ever, definitely the worst since I had the tumor out. This is shocking because when Saci was working it was working SO well. But it stopped.
Cancer is smart. It adapts and changes very quickly. Triple-negative cancer is the most aggressive; it grows faster than any other. And it's been growing. Everyone is concerned to get me onto a new (fifth) line of treatment quickly, but it's a little less clear what that should be. We're basically just heading down the list of chemos now.
It's not an exaggeration to say that this changes the overall likelihood for my survival. Saci is so new that we had all hoped it might turn into a long-term option for me. Instead, I got precisely the median time in the study (7 months).
Even if I could type, which I really can't given the level of pain this causes, I don't know what I would say. It's an especially hard time and is going to take a lot of reassessment. But I do know that people what to know how I am, and that I must share the bad news with the good too, so here it is.
Be well,
Rebecca
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